About myself… well to start out I am someone that is extremely active and for fun I enjoy boating, spending time with my two little boys Landon (will turn 6 in September) and Liam (will be 4 in November). Also, I enjoy working out, just started Crossfit last month and LOVE it!! Anything involving water and being outdoors, I love!
I grew up just outside of Philadelphia and was diagnosed with cystic fibrosis before I was born after my older brother, Will’s, diagnosis. I am a recent graduate of Fordham University and I live in New York City with my rescue dog, Boo Radley (named after a character from my favorite book, To Kill a Mockingbird). I am a singer, actor and model and also work as a cystic fibrosis and patient advocate. I founded a nonprofit called Singing at
Hello my name is Bree Labiak. I love to surf and skateboard. I am number one in the Mid Atlantic ESA Surfing Regional Championship for under 14 , under 16 , and under 18. I surf at 13th avenue south in the town of Surfside Beach.I go surfing just about every day either with my coach Rayn McDonough/r my other friends from 13th. I also have cystic fibrosis. The salt water helps me with my lungs so I am a
My name is Michael Caruso Davis and I am 13 years old. I love to play sports and run. My favorite sports are lacrosse and basketball. I also love to be at the beach. I like to surf, skim board and pretty much whatever else you can do on the beach. I’ve just recently started to like cooking also. I love to be outside with my friends but sometimes I can’t do that because I’m either doing treatments or too
Colin Randles (12 years old; 6th grade) My name is Colin Randles, I’m 12 years old and I have cystic fibrosis. I live at the beach and love playing sports. My favorite subject in school is science. My life with CF is hard and at times not fun. My friends motivate me the most. They push me to do my treatments and take my medicine. My favorite sport is lacrosse. I also like surfing, basketball and running. My favorite sports
I was born and raised in the South of England moving to the USA at age twenty four. Three years later at the challenge of my older sister Nicole my running career was born and in 1990 I ran my first marathon in NYC. By 2016 I have run twenty seven marathons, improved my marathon time from 4.41-2.34 and my mile time from ten minutes to 4.21. During that time I began a coaching career, co founded The Iron Maidens
I’m a senior at the University of Delaware. Next year I’ll be attending Stony Brook University’s program for a doctorate in Physical Therapy. I’m a very loud person with a lot of energy. I pretty much love any activity that I can do outside and I have yet to find an animal I don’t like.
I grew up in New Jersey and moved to Boston for graduate school in 1999. Shortly thereafter, I began working as a scientist at a large biotechnology company and met my husband, Brian. We have two children, Colin (6) and Taryn (5). Colin was diagnosed with cystic fibrosis when he was 5 days old.
I’m a freshman at Westlake High School in Austin, TX. I was diagnosed with cystic fibrosis at birth. I live a pretty normal life outside of doing therapy twice a day and taking lots of pills.
I grew up in Manhasset, New York and received an economics degree from Haverford College. I’ve been an athlete my entire life and played lacrosse through college. At Haverford I was a 2-year captain of the team and helped lead us to our first ever Conference Championship in 2010. We also made a run to the quarter finals of the NCAA tournament that year, the furthest we’ve gone in history. Since college, although I don’t get to play lacrosse as much
I was diagnosed with CF at the age of 5 and have one sister, Mallory, who also has CF. Our parents have always supported us in anything we chose to do whether it was school, work, or other activities. They also always told us to do our best to stay healthy so that when a new treatment or cure is found, we would be healthy enough to receive it. That’s what I try to do. Growing up, CF wasn’t an
I was told I couldn’t do many things but have never allowed myself to be held back by others’ expectations. In addition to working hard to manage CF with diet, exercise and nutrition, I challenge myself to inspire others.
I’m from the Poconos in Pennsylvania. I love and played a number of different sports throughout high school and college (tennis, softball, basketball) but I never pursued or even thought about endurance sports until a good friend suggested it about a year ago. I also love dogs. One of my favorite running activities is to dog watch to help keep my mind busy.
I am from Stamford, Connecticut and have one sister Annie, who is going to be a senior in high school, and two loving parents, Lorraine and Vincent, who have supported me as my equipment managers and photographers at all my Team Boomer races. I have played a number of different sports including football, hockey, and lacrosse at KLHT (where I went to school from kindergarten through high school) and rugby at Boston College, but I was never a long distance,
I grew up in Rochester, New York with an incredibly loving and supportive family. When I was diagnosed at age two, forecasts were bleak. Two of my dad’s brothers had passed away from CF as children and that was the only experience with the disease my family knew. And they responded beautifully. I was raised like any other kid – taught to set goals and dream big. I had some scary health moments when I was in elementary school and
I was born on June 27, 1956, and have three older brothers as well as a younger brother and sister. Fortunately, out of the six of us, I am the only one with CF. After I was diagnosed, the doctors told my parents that I most likely would not live past the age of 16 – that they should keep me comfortable at home. Instead, my parents got me involved in sports with my brothers – playing football, baseball, and
I was born and raised in Westerly, RI, a small town in the southwestern corner of Rhody. I’ve been living in Manhasset for the past 24 years. I’ve been married to my beautiful and incredibly patient wife Paula for almost 23 years, who in addition to putting up with me, leads the charge in making sure our two children, Skyler (16) and Cole (13), are fed, do their homework, and take their shoes off in the mudroom.
I was born and raised in Northern New Jersey. My parents still live in Tenafly, NJ, are happy and healthy, and are fabulous grandparents to our two boys – Nicholas (23) and Alexander (20). Nick works on Wall Street and Zan is a sophomore at LMU in Louisiana. My wife Lynn and I started dating when I was in the 10th grade and she was in the 9th grade – and have now been married for 26 years!