My name is Connor Hess, I am 14 years old and on the High Honor Roll at Union Vale Middle School in Dutchess County, NY. I enjoy hunting and fishing and am very active in sports. I started playing baseball and soccer when I was just four years old. I played youth football and was lucky to play against the team that my CF doctor, Dr. Boyer coached. One year his team won, and then our team won the next
I’m Mackenzie – my coaches like to call me “Big Mack” because I’ve always been a small powerhouse! I am in 7th grade and my favorite subjects are English and French – tres bien! I am a dancer and I have been dancing for 3 years. Before that, I was a gymnast for 8 years. When I was 8 years old, I was the New York State Level 4 Gymnastics Champion on balance beam, floor exercise and all around champion.
I live with my mom Lynsey, dad Chuck, 11-year-old brother Rhett, and our Golden Retriever Majors. I’m a daughter, sister, granddaughter, friend, softball player, lefty pitcher, artist, Honor Roll student, sushi lover, popcorn enthusiast, social media junky, and listener of music of all kinds who happens to have Cystic Fibrosis. My sports teams are the University of Tennessee Volunteers, St. Louis Cardinals, and New England Patriots only because of Gronk. I was diagnosed with CF when I was 18 months
I like swimming. I go to school. I like running with my friends. I like pizza and yogurt and turkey and cheese. I love my whole family and my friends. I have a special belly and I have to take enzymes when I eat. Enzymes help me digest my food. They make me strong!
I was diagnosed with CF at the age of 2. I have two brothers that also have Cystic Fibrosis. I am the youngest of the three. I was born and raised in Cincinnati, Ohio. My favorite football team is the Bengals and baseball is the Reds. I am a huge dog person and have a golden retriever that is 8 years old named Daisy. While growing up, I played basketball and ran cross country. When you think of someone with
Well, where to start…I’m 26 years old and I have my own videography and editing business. I was diagnosed with CF at birth and I have an older brother, Patrick, who had CF. Along with Pat I have a younger brother, Greg, and an older sister, Kelly. I’ve always been known as the goof ball of the family and I always try to keep everyone laughing wherever I go. Throughout my life I have always been an active person. Whether
About myself… well to start out I am someone that is extremely active and for fun I enjoy boating, spending time with my two little boys Landon (will turn 6 in September) and Liam (will be 4 in November). Also, I enjoy working out, just started Crossfit last month and LOVE it!! Anything involving water and being outdoors, I love!
I grew up just outside of Philadelphia and was diagnosed with cystic fibrosis before I was born after my older brother, Will’s, diagnosis. I am a recent graduate of Fordham University and I live in New York City with my rescue dog, Boo Radley (named after a character from my favorite book, To Kill a Mockingbird). I am a singer, actor and model and also work as a cystic fibrosis and patient advocate. I founded a nonprofit called Singing at
Hello my name is Bree Labiak. I love to surf and skateboard. I am number one in the Mid Atlantic ESA Surfing Regional Championship for under 14 , under 16 , and under 18. I surf at 13th avenue south in the town of Surfside Beach.I go surfing just about every day either with my coach Rayn McDonough/r my other friends from 13th. I also have cystic fibrosis. The salt water helps me with my lungs so I am a
My name is Michael Caruso Davis and I am 13 years old. I love to play sports and run. My favorite sports are lacrosse and basketball. I also love to be at the beach. I like to surf, skim board and pretty much whatever else you can do on the beach. I’ve just recently started to like cooking also. I love to be outside with my friends but sometimes I can’t do that because I’m either doing treatments or too
Colin Randles (12 years old; 6th grade) My name is Colin Randles, I’m 12 years old and I have cystic fibrosis. I live at the beach and love playing sports. My favorite subject in school is science. My life with CF is hard and at times not fun. My friends motivate me the most. They push me to do my treatments and take my medicine. My favorite sport is lacrosse. I also like surfing, basketball and running. My favorite sports
I was born and raised in the South of England moving to the USA at age twenty four. Three years later at the challenge of my older sister Nicole my running career was born and in 1990 I ran my first marathon in NYC. By 2016 I have run twenty seven marathons, improved my marathon time from 4.41-2.34 and my mile time from ten minutes to 4.21. During that time I began a coaching career, co founded The Iron Maidens
I’m a senior at the University of Delaware. Next year I’ll be attending Stony Brook University’s program for a doctorate in Physical Therapy. I’m a very loud person with a lot of energy. I pretty much love any activity that I can do outside and I have yet to find an animal I don’t like.
I grew up in New Jersey and moved to Boston for graduate school in 1999. Shortly thereafter, I began working as a scientist at a large biotechnology company and met my husband, Brian. We have two children, Colin (6) and Taryn (5). Colin was diagnosed with cystic fibrosis when he was 5 days old.
I’m a freshman at Westlake High School in Austin, TX. I was diagnosed with cystic fibrosis at birth. I live a pretty normal life outside of doing therapy twice a day and taking lots of pills.
I grew up in Manhasset, New York and received an economics degree from Haverford College. I’ve been an athlete my entire life and played lacrosse through college. At Haverford I was a 2-year captain of the team and helped lead us to our first ever Conference Championship in 2010. We also made a run to the quarter finals of the NCAA tournament that year, the furthest we’ve gone in history. Since college, although I don’t get to play lacrosse as much
I was diagnosed with CF at the age of 5 and have one sister, Mallory, who also has CF. Our parents have always supported us in anything we chose to do whether it was school, work, or other activities. They also always told us to do our best to stay healthy so that when a new treatment or cure is found, we would be healthy enough to receive it. That’s what I try to do. Growing up, CF wasn’t an
I was told I couldn’t do many things but have never allowed myself to be held back by others’ expectations. In addition to working hard to manage CF with diet, exercise and nutrition, I challenge myself to inspire others.
I’m from the Poconos in Pennsylvania. I love and played a number of different sports throughout high school and college (tennis, softball, basketball) but I never pursued or even thought about endurance sports until a good friend suggested it about a year ago. I also love dogs. One of my favorite running activities is to dog watch to help keep my mind busy.
I am from Stamford, Connecticut and have one sister Annie, who is going to be a senior in high school, and two loving parents, Lorraine and Vincent, who have supported me as my equipment managers and photographers at all my Team Boomer races. I have played a number of different sports including football, hockey, and lacrosse at KLHT (where I went to school from kindergarten through high school) and rugby at Boston College, but I was never a long distance,