Miles was born on April 12, 2013. Miles lives with his mom, dad, and best friend Blu (his dog). Miles loves friends and outdoor adventures. He loves going to the beach, going camping, and riding his bike around the neighborhood.
I am a ballet dancer, and I was diagnosed with cystic fibrosis at 18 months old. I dance with the New Ballet School and have been doing ballet since I was six years old. I also do a lot of advocacy work and fundraising for the Cystic Fibrosis Foundation and am a member of National Charity League. One of the highlights of my dance career was attending the American Ballet Theatre’s highly selective summer intensive in New York City in
Hi, I’m a twelve-year-old boy from a small town called Maynooth which is about 30 km from Dublin in Ireland. I’m in sixth class in my local Irish/gaelic speaking school. I love running (I run with the local running club st. Cocas and I’ve a 19.08 five k pb and I’ve also a medal in the all-Ireland cross-country u 13). I love tae kwon do (I’ve a red belt. The next belt is a black belt), and I play hurling
My name is Alayna im 15 years old. I was diagnosed with CF during my moms 20th week of pregnancy. Before Covid I was a cheerleader for Allen Park High School sideline and competitive. When it comes to my CF my mom has always taught me not to let it define who I am and what I can do. November 14, 2019 I started Trikafta. Since then my lung function has increased more then 25 percent. My baseline was around
Hi, my name is Elijah Creech. I’m just your average 10-year-old, I enjoy playing Fortnite with my friends and other online activities right now since I can’t see them in person. I’m in the 5th grade, and really enjoying virtual school since I don’t have to wake up super early to do my treatments before school!
My name is Hannah Nelson, I am 19 years old and a sophomore at the University of Central Florida majoring in Engineering. Growing up I have always had the love of horses. I started riding at the age of 7 and never looked back. Riding horses takes a lot of strength, mental focus and passion. Growing up in the equestrian world I have had amazing trainers, where I have been able to compete in local horse shows as well as
I like to draw, read and play video games. My brother Carter is my best friend. My sister and little brother are fun to play with and keep our house loud. My mom and dad say I’m a good dancer and I’m good at remember song lyrics and movie quotes. I like to eat dinner stuff for breakfast, I love chili! I never let anyone get the best of me or let Cystic Fibrosis stand in my way.
I’m going into my second year at the University of California, San Diego, and am majoring in Human Biology. I was diagnosed with Cystic Fibrosis at birth, and have been participating in CF events for my whole life. To stay active, I love to run every day and ski, surf, and travel when I can.
I like Legos and Minecraft and hanging out with my cousin. I have a brother two years younger than me that I do everything with. I was diagnosed with CF at 3 weeks old and got a feeding tube when I was in third grade. It is still the most painful experience I’ve had. It has helped me to be healthy and have less hospital visits. I’ve been able to continue to do all activities that I was doing before
I enjoy nature and being outdoors. Fitness activities include running, surfing, kayak, stand up paddleboard (SUP), camping & hiking when I can get to the mountains. I work at a local wildlife hospital and sanctuary that rescues, rehabs, and releases Florida wildlife.
I’m Sebastião, I’m 28 and I was born with cystic fibrosis. I was diagnosed at one and a half years old and until I was 16 I lived well, without any major problems (besides some infections from time to time, treated with IV antibiotics), and much of that I give to my incredible parents who did everything to ensure I lived a normal and active life, doing all my therapies right, taking all the medicines every single day and practicing
I am 27 years old, and I have live in the Mid-Hudson Valley in NY. I currently work for a medical technology company in Greenwhich, CT by day, and can be often found at the gym most week nights. Having first been diagnosed with Cystic Fibrosis at 7 months old, I have been fighting CF for as long as I can remember. I have been blessed to have many amazing family and friends who have always been there for me
We had to cancel all of our spring fundraising events – even what was supposed to be our 10th annual Run to Breathe in Central Park, a morning that celebrates the strength and hopefulness of the entire cystic fibrosis community. In spite of – or maybe even because of – the challenges we have all faced these past weeks, our Team Boomer community came together and yet again inspired our entire staff. So, we want to highlight the incredible groups
I am a 43 years old single parent to an amazing 9-year-old boy Gabriel and a Sweet mini golden doodle Ruby who keeps up active and lifts our spirits every day. Gabriel is my inspiration and motivation to keep moving and running. I didn’t know I had cystic fibrosis until I got pneumonia at 34 years of age. At first, doctors thought I had tuberculosis, but then later discovered I was suffering from a rare infectious disease called micobactrium avium.
I am 15 years old and I go to CBA. I run cross country/track for my school and practice there every day. When I’m not working out I am usually studying, or when I manage to find some free time I enjoy building computers and graphic design.
I am so honored to be chosen as the official Team Boomer Athlete of the Month for January 2020. I was diagnosed with Cystic Fibrosis at the age of one, and my older sister, Laura, has CF as well. I have a wonderful, supportive husband, Jonathan, and we have two sweet children ages 6 and 9. I work as an attorney, and my favorite hobby is running. I started running in my 30s by first just trying to run to
I was born and raised in Monmouth County, NJ which is where I still call “home” today. I was diagnosed with CF at two years old in 1976 when there was significantly less understood or known about the disease than today. I spent much of my youth taking monthly visits to the Children’s Hospital of Philadelphia (CHOP). I had a very active childhood, and athletics were a big part of growing up. I ended up playing collegiate rugby for Mount
I am a born and raised Coloradan and currently live in Denver where I work as a risk and underwriting analyst for a large health insurance company. I was diagnosed with CF at 2 weeks old. I grew up in a very active family surrounding by so much love and support by everyone I knew, and running is in our blood. Training for a marathon has always been on my list, and NYC has always been my top choice because
I think about myself as a competitor, I like winning. I am a freshman at Barton College and I also play football. I am the second oldest of five. I was diagnosed with CF in my junior year of high school and honestly, I was shocked because I felt pretty healthy my whole life. I began to see CF as yet another challenge. Challenges are funny because you can either go at it head-on or falter. When describing myself I