My name is Ella Scanlan. I am 25, with the double delta f508 mutation of cystic fibrosis. I am from Dublin, Ireland and was diagnosed with CF when I was one. Since that day, my family and I have lived by the ethos that where this is a will, there is a way – which is how I managed to attend and finish college with over 10 hospital admissions and countless absences. Despite that, I made it out the other
I am going into my junior year at Palm Desert High School. I was born and raised in Alberta, Canada, where I played hockey and soccer non-stop. I was in Canada for about 8 years, moving every 2 years or so to different cities in Alberta, so I had to learn to adapt to my environment constantly. When I was 8, we moved to Newport Beach, California and lived there for about 4 years. In Newport Beach, they did not
My name is Camryn Koke, I am 13 years old. I live in Southold NY out on the north fork of Long Island. I was born with Cystic Fibrosis which affects my life every single day with the treatments I have to do to stay healthy. I promised myself that I would never let cystic fibrosis be who I am only a challenging obstacle!
My name is Erinn Hoyt and I am 27 years old. I was born at Stanford Hospital in Palo Alto, California and was diagnosed with cystic fibrosis at birth. I began swimming competitively when I was only 5 years old and it quickly became my main passion for the majority of my life. When I was 25 years old I was listed for and received a lifesaving double lung transplant. I quit swimming when I was 17 years old. Not
My name is Travis Blau and I am from Jackson, New Jersey. Growing up with CF, I never let that stop me from playing sports, which I think had a huge impact in me staying healthy for as long as I did. I am 28 years old and I received a double lung transplant on my 27th birthday. I was working out until a month before I got the call that would change my life forever. I am currently a
I am the middle child of five. I have three sisters, squished between two older and one younger, along with a younger brother. I was born and raised in San Francisco, California until I was nine when my family moved across the Bay Bridge to the island city of Alameda, all the while going to the UCSF Pediatric CF Clinic. I left California for college and ended up in Nashville, Tennessee (to make life miserable for my parents, my older
My name is Ada Reed Rogers, and I began my first year of Junior High this past fall in my hometown of Union City, TN. I was diagnosed with CF when I was 5 months old and Juvenile Diabetes when I was in kindergarten. I don’t remember my life without having those things so I don’t think I’m really all that different. My friends and my family don’t treat me differently, and my coaches and teachers don’t either. I’m really
I’m a son, brother, boyfriend, friend, and collegiate athlete. I was diagnosed with Cystic Fibrosis at 7 months old. I’ve been hospitalized just a few times throughout my life. My doctors encouraged me to stay active in sports which I believe has helped keep me out of the hospital. When I’m not spending my time with family or teammates, I like to watch football or play Madden. Most of what I do involves football because the sport has provided an
I was diagnosed with cystic fibrosis when I was eight days old through newborn screening. My treatments started that day, and I have never known anything different. Because we live at the beach, my love for the ocean started early… even before we knew about Hypertonic Saline being such a great therapy. I went to my first Mauli Ola Surf day when I was six and have been hooked on surfing and boogie boarding since that day. During the summer,
I enjoy dancing (ballet, jazz, and tap) and have performed in Delaware Dance Company’s The Nutcracker since age 7. I am excited to be a Page and a member of the Trepak Corps in this year’s production. I also enjoy running – this is my second season running cross country on the middle school team at Conrad and I ran track last year where I competed in the 800m run, 1600m run, and on my team’s 4X400m relay.
I like to play football and basketball. I’ve been playing in a football league since I was 7, but have loved football longer than that. I like playing basketball and will be trying out for my schools team in October. I’ve been on the news while playing flag football which was so much fun! It wasn’t my favorite team the Steelers though! I also play the alto saxophone, but I love football more, because I don’t like sitting for too long.
Education: Bachelors in Sport Management, Associates in Business Administration Occupation: Assistant as CBS Sports Network (Manhattan, NY) My name is Teena and I am 22 years old. I am from Long Island, New York. This past May, I graduated from Long Island University, located in Brooklyn, where I obtained my Bachelor’s degree in Sport Management. I also obtained my Associates degree, in Business Administration, at Monroe College located in New Rochelle, NY. Growing up, I was always active and always had a
I was diagnosed with Cystic Fibrosis since 6 weeks old. I was lucky that I had a huge interest in sport and played soccer since I was 10 years old which helped me stay healthy for years. Cystic Fibrosis didn’t hold me back till I was in my early 20’s and my lung function started to decline. I continued to finish my education as a personal trainer and sports therapist and finished that in 2013 where I took a year
My name is Connor Johnston. I am 8 years old and getting ready to go into 3rd grade. I live just outside of Socorro, NM with my parents and two older brothers Cody (13) and Cole (11). They do not have CF. I was diagnosed with Cystic Fibrosis when I was 10 months old. I have been in the hospital 4 times since I was diagnosed.For the most part I am pretty healthy now. My lung function is a little
My name is Reilly Hoagland, and I am 10 years old. I live in Toms River, NJ with my parents, my 6-year-old sister Melanie (she doesn’t have CF), and my dog Ryder (yes, he is named after a former NJ Devils Hockey player). I was diagnosed with Cystic Fibrosis when I was 4 years old. I have been pretty lucky to have not been in the hospital since I was diagnosed with CF. This year, I even got perfect attendance
Hey, I’m Josh Llewellyn-Jones. I live in Wales and own and run an advertising agency called J Squared Marketing. Alongside running a business, I train, a lot. My typical day involves a full working day (with plenty of overtime) and a 2-3 hour workout and plenty of food! I also founded 24hrs4cf which is a movement to inspire and motivate other CF Warriors to exercise to try and stay fit and healthy. I’ve always kept myself fit and healthy through
Hi, I’m Sydney Willig. I’m 13 years old. I am in 8th grade at Norwin School District in Pittsburgh, Pa. I enjoy playing soccer, snow ski racing, and water skiing. I also enjoy hanging out with friends, zip lining, and swimming. I snow ski for Deep Creek Winter Sports Team. I play soccer for a cup team called Foothills Soccer Club. This year I made Derby’s which is a State Championship out of a lot of areas which you have
My name is Connor Hess, I am 14 years old and on the High Honor Roll at Union Vale Middle School in Dutchess County, NY. I enjoy hunting and fishing and am very active in sports. I started playing baseball and soccer when I was just four years old. I played youth football and was lucky to play against the team that my CF doctor, Dr. Boyer coached. One year his team won, and then our team won the next
I’m Mackenzie – my coaches like to call me “Big Mack” because I’ve always been a small powerhouse! I am in 7th grade and my favorite subjects are English and French – tres bien! I am a dancer and I have been dancing for 3 years. Before that, I was a gymnast for 8 years. When I was 8 years old, I was the New York State Level 4 Gymnastics Champion on balance beam, floor exercise and all around champion.
I live with my mom Lynsey, dad Chuck, 11-year-old brother Rhett, and our Golden Retriever Majors. I’m a daughter, sister, granddaughter, friend, softball player, lefty pitcher, artist, Honor Roll student, sushi lover, popcorn enthusiast, social media junky, and listener of music of all kinds who happens to have Cystic Fibrosis. My sports teams are the University of Tennessee Volunteers, St. Louis Cardinals, and New England Patriots only because of Gronk. I was diagnosed with CF when I was 18 months